October 29, 2004

so here’s jackson, isn’t he sweet? those are the new cells that could prolong his life and help him fight his krabbe’s disease. i just want to cry when i see him but i know today is a very hopeful day.

Jeremiah 29:11 “For I know the plans I have for you, says the Lord, plans to prosper you and not harm you, plans to give you a hope and a future!”

much love and peace jackson….


4 Responses to “jackson…”

  1. Kate Says:

    Thanks for making me cry at work.


  2. patience Says:

    i know kate, isn’t he just so dear? d’anne and marshall just blow my mind, they have been really amazing- honest, sad, broken, positive, lots of courage…and jackson, his little pictures just say it all i think. his purpose just envelopes him, the gentleness in his face, he’s a special boy.

    this little family just seems divinely matched huh? they bless my soul and remind me of what real truth, beauty and love are…

  3. Kate Says:

    Well I have a question about this. Are they hoping that this transplant will actually cure him? Or are they just hoping to delay things for him?

  4. patience Says:

    from my understanding, there is no cure for Krabbe disease BUT the stem cell transplant is really promising. i think the original prognosis is 1-2 years but jackson’s case hasn’t really been typical from the beginning and he seems to be responding well to this treatment. i think there is just a lot of unknown since it is so rare. the things they are doing with stem cells is just fascinating and brings lots of hope for both the quality and length of children’s lives. it seems to be getting lots of press recently- i hope this will help jackson and encourage raising the money needed for further research.

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